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Home > Medical Answers > Getting off Dexamethasone, Or as I like to call it, (Deathamethasone)?

Getting off Dexamethasone, Or as I like to call it, (Deathamethasone)?

Posted on 12-Jul-2023 - Last updated: 12-Jul-2023

... I was prescribed this drug from my quack... supposed Migraine Specialist, Thankfully he has since retired but I wonder at what cost to all his past patients? Regardless I did find out that I have severe food allergies that trigger Migraines along with some physical neck problems. The prescribed dose was 8mg per headache. So if I had a headache a week? You all can do the math. This has been over a four year period of Idiocy. I have researched over the years turns out the half life of Dex is approximately 72 hours?(correct me if Im wrong) with this strength it appeared to me to last almost a week, I could almost time my headaches. As it turns out and along with the math, the Dex, or lack thereof was causing my headaches.(Constant Cycling) took a number of years to figure all this out. I went from 8mg to 4mg to 2mg to 1mg alone, by myself. Then came the fun part. All the side effects, weight gain, stomach issues, trying to get off this stuff. I couldn't figure out why when I would stop off the 1mg for over 4 days, etc... I could hardly walk up the stairs? after recent lab work up... (adrenal Insufficiency) very low Cortisol levels. I thankfully have a pretty good doc and we have been working together to hopefully get me off this stuff. I am now on Cortisol (Cortef/hydrocortisone) to hopefully finish weaning myself off all this. With the Cortisol, it needs to be taken three times a day. Its a lot safer than all the other steroids due to short acting nature. The information that I have gathered and by my Doc is this could take 6 months maybe more to get my adrenals to kick back in. Thankfully, I have no other medical issues. I have put on a little weight which I'm slowly exercising off, all my other lab work is good. Im hoping this long drawn out process of getting off this stuff is normal. Any comments would be appreciated. I suppose it could be worse. But im hoping that my adrenals will kick in faster than many months or years? Try to avoid steroids like the plague. Ask your Doc lots of questions before doing these. If you have to go on steroids make sure you have a great Doc, and a plan in place to get off them. take lots of lab test to check your levels and work with your Doc. If he or she wont give you the amount of time to ask questions, etc... make their life miserable. You deserve answers and a fix. They need to be responsible for their actions as well as us as patients. Thanks All

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